Inherited Retinal Diseases and Children’s Vision and Eye Health: What You Need to Know

Inherited Retinal Diseases and Children’s Vision and Eye Health: What You Need to Know

Date: Tuesday, May 16, 2023, 3-4:30 p.m. ET via Zoom

Register at https://nationalcenter.preventblindness.org/events/inherited-retinal-diseases-webinar-51623/

Inherited retinal diseases—or IRDs—can cause severe vision loss or even blindness. Examples of IRDs include Retinitis Pigmentosa, Choroideremia, Stargardt Disease, Leber Congenital Amaurosis, and Cone-rod Dystrophy. Each IRD is caused by at least one gene that is not working as it should and they can affect people of all ages, can progress at different rates, and are rare. This webinar will focus on children living with an IRD. Topics covered will include causes, diagnosis, genetic testing, treatment (including gene therapy), and support for children and families. Learn more at Inherited Retinal Diseases - Prevent Blindness.

This webinar is geared to parents and families, family and patient support organizations, school nurses, Head Start and other early childhood program staff, Early Intervention and special education professionals, teachers of students with visual impairments, and health care providers.

Presenters:

• Donna Hunt Hodge, MBA, Director of Marketing, Retina Gene Therapies, Janssen Pharmaceutical Companies of Johnson & Johnson
• Arlene Drack, MD. Ronald Keech Professor of Pediatric Genetic Eye Disease Research, Director, Electrophysiology Institute for Vision Research, Department of Ophthalmology and Visual Sciences, University of Iowa
• Sherry Day, OD, FAAO. Clinical Assistant Professor, Ophthalmology and Visual Sciences Section Leader, Vision Care, Contact Lens and Low Vision Rehabilitation, University of Michigan
• Kari Branham, MS, CGC. Assistant Professor, Ophthalmology and Visual Sciences and Genetic Counselor, Inherited Retinal Dystrophy Clinic, University of Michigan
• Patient with IRD and parent of children with IRD